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POI registry
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welcome


A diagnosis of Premature Overian Insufficiency (POI) impacts on many aspects of a young woman's health. We are a group of doctors led by Mr Nick Panay, Consultant Gynecologist from Imperial College London, Queen Charlotte's & Chelsea and Chelsea and Westminister Hospitals. We aim to bring together clinicians, scientists, patients, academia, industry and government under one umbrella to produce a national and international database to support the research and understanding of POI.

WHY IS THERE A NEED FOR A DATABASE?

Rare diseases limit the experience of any one centre of care, which leads to fragmented research and patient care. By producing and managing this database we can work towards increased understanding of the natural history of the disease, targeted treatment regimens and improving overall patient care.

CALL FOR COLLABORATION

By working as a collective we have an opportunity to collate valuable data and make considerable progress in understanding and treating this disease.